Colloquia

Summary

Patient-Reported Outcome Measures (PROMs) are increasingly used in healthcare to incorporate the patient’s perspective and support Value-Based Healthcare. However, their current implementation often fails to deliver value due to usability issues, low engagement, and limited integration into clinical practice. This thesis explores how PROMs can be redesigned to better support Shared Decision Making, particularly for patients with Multiple Sclerosis. Using the Values that Matter approach, the research identifies key stakeholder values (patient-centeredness, quality, and efficiency) and translates them into design criteria. Through literature reviews, expert interviews, and two rounds of co-design sessions with patients and healthcare professionals, three concept directions were developed and evaluated. The final design, a digital consultation preparation tool, enables patients to report symptoms, prioritize discussion topics, and receive a summary to guide consultations. The tool enhances communication, engagement, and relevance, aligning with both patient and healthcare professional values. This thesis demonstrates how a value-sensitive design approach can lead to more meaningful and effective healthcare tools, offering a promising alternative to traditional PROMs.